What to do…

During my lazy spell of not working out and right before I got back on track, I was doing some research on the web for an easier machine I could use to get a cardio workout. I have an exercise bike that my dad and I use but we have to Frankenstein the thing so that my legs don’t get banged up. It is very strenuous for my dad and I don’t want him to hurt himself.

I typed in cardio workout for people in wheelchairs into google and low and behold a link to this wonderful smart bike popped up. This link was to a place called Restorative Therapies, Inc.  There they have this bike that is specially made for people with spinal cord injuries, people with MS. (like me), or for peple that are in the ICU and are in a coma.  This bike has electrodes connected to it to stimulate your major muscle groups and helps with atrophy, spasms, spasticity and can build up your muscles even if you have no mobility… I so want this bike for so many reasons but this is where I am having the dilema.  My insurance company will deny it at first and then the company will appeal and that can take about a year. so I thought I would be proactive about it and try to raise the money myself because I don’t have the money to buy it outright.  I told my parents about that idea and my dad was not on board with that.  So what do I do?  Listen to my dad; even though I am 32, and not raise the funds myself or do I just do it anyways.

I have been mulling this over for about two weeks and am still not sure.  I know what I want to do but what will be the consequences if I do. 

I guess I will just have to think about it a little more before making a decision.


That much progress?

I was talking with my mom the other day about a co-worker of hers and it got me thinking of the last time I saw him.  It was on my 30th birthday and it was a huge party.  He had come before the party had started because he had to work later and that got me thinking of where I was during our conversation.

I was in my room lying down in my hospital bed because I tended to get worn out pretty quickly so I was resting before the party.  At that time I was still wearing diapers, not very independent and could not move around much.

That was two years ago and the progress I have made since then is amazing to me.  I no longer have that hospital bed, do not wear diapers, move around freely around the house with my wheelchair and work out with my mom and am working on trying to stand and walk.

I now realize that the determination I had back then to get out of that hospital bed is what I need to help me with the goals I set for myself at the beginning of this year.  If I stick with it I know I can reach that goal.

Finally, progress.

Yesterday was a big day for me.  I finally after eight years was able to ride the bike on my own for about one minute. 

This is just the first step for me and hopefully in the near future I will be able to walk on my own.


You are probably asking yourself what happened to me, well I’ll tell you.  About eight years ago I went into a coma due to complications from a port I had placed in my chest.  It got infected and caused major havoc to my disease, thus the coma.  I really don’t know how long I was in the coma but when I finally opened my eyes and my mom told me that I was not focused, that my eyes were staring at nothing and looked glassy.  To top it off I was in locked in syndrome.  For those of yu who don’t know what that is, it is when you cannot move, you have a form of lock jaw and for a time could not communicate.  This was a very emotional and difficult time for my family and I because the doctors kept telling my parents that I would have to be put in a home, which they vehemently refused, and as for me I finally was coherent enough where I was aware of what was going on but was trapped in my own silent prison.


One day however I was finally able to move the muscles in my face and open my jaw a tiny bit.  from then I was able to move a little more everyday. 

The hard thing was that I had to learn everything from scratch, that is: walking, moving my arms and fingers, holding onto stuff and even eating whole foods.  I have made so much progress since that time ad the progress just keeps improving. 


It is a battle everyday to just get up but I do it because that is the only way I am going to get back to normal.  No one else can push me to do it but me. 

So each time I feel like I want to give up I just remember where I was eight years ago and snap myself out of it.  I have come so far I am not about to give up now.